OSSE – open source registry software solution
نویسندگان
چکیده
Project goal OSSE (Open Source-Registersystem für Seltene Erkrankungen in der EU / Open Source Registry System for Rare Diseases in the EU) provides patient organizations, physicians and scientists with open-source software for the creation of patient registries. As a result, the national registry landscape is improved to comply with European principles regarding e.g. minimum data set and data quality, as summarized in the EUCERD recommendation on rare disease registries. Also, the necessary interoperability is achieved to facilitate federation of those registries on a national and international level.
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